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posted by [personal profile] imaginarycircus at 02:01pm on 19/09/2007
I was supposed to head into Manhattan today to read manuscripts for my old boss. Just something to do so I feel like an almost normal human being and not a 90 year old shut in. But I woke up after sleeping for 9 hours and promptly conked out again for three more hours. (I took half an ambien and elavil last night.) Woke up again achey and on the verge of tears! yay! So skipping the trip downtown today. Since I was volunteering so it is not a big deal, but I feel really crappy about it. How am I going to work a full time job in November when I can't manage once a week now?

I am hopeful that the meds will level out by then and the physical therapy will help? I don't know.

David has been working such long hours and weekends and we haven't been to the grocery store in forever. We only have a CVS in the neighborhood (besides Bodegas that I don't even want to set foot in) which is only good for milk. We are out of everything except utter staples. I managed to throw together some corn muffins because we have polenta and flour and buttermilk. I was shaking as put them in the oven. But I did it! I'm torn because I'm pleased that I managed to do it, but really depressed that this the bar for accomplishment is so low for me right now.

I am not willing to set aside my life and the goals I had before I was diagnosed with fibro. But I think I am going to have to be more flexible about how long it takes me to accomplish those things. And I've been pretty lucky. I've already accomplished several things on my list: marriage, grad school, moving into a career I am passionate about (in progress.)

And my dream of climbing Mount Kilimanjaro might be beyond me, or I might be able to do it someday. But unless things change the snow won't be there...
There are 10 comments on this entry. (Reply.)
 
posted by [identity profile] http://users.livejournal.com/anam_cara_/ at 08:44pm on 19/09/2007
I hope the meds level out for you soon! One thing at a time, sometimes that's how things go. And there's nothing wrong with breaking down and ordering delivery once in a while!
 
posted by [identity profile] imaginarycircus.livejournal.com at 09:23pm on 19/09/2007
We do. We wouldn't be eating at all if it weren't for take out. :(
 
posted by [identity profile] piperki.livejournal.com at 03:25am on 20/09/2007
MMM takeout. Isn't there a grocery store that delivers? Even Chicago has that. We don't have that, but then, we don't even have stuff like subways. Can you order some groceries on the intarwebs and have them delivered?
 
posted by [identity profile] imaginarycircus.livejournal.com at 05:59am on 20/09/2007
The only grocery store that will deliver is the evil Stop and Shop and I hate them. I was planning on picking some stuff up in the city today but I didn't go. :(
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posted by [identity profile] wishwords.livejournal.com at 12:32pm on 20/09/2007
Wish I could loan you some spoons.
 
posted by [identity profile] imaginarycircus.livejournal.com at 08:48pm on 20/09/2007
Spoons? I'm confused.
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posted by [identity profile] wishwords.livejournal.com at 10:22pm on 20/09/2007
Spoons - you only get so many a day. You "spend" one with each task that is difficult because of illness. When you run out all you can do is go back to bed. The post sounded like you were running out of spoons.

Wish I could remember who came up with the theory.
 
posted by [identity profile] imaginarycircus.livejournal.com at 10:56pm on 20/09/2007
I've never heard about that before! I do try to limit what I have to do in a day, because pushing myself too hard means I lose a day or two afterward.

Aren't we having a fun time!?
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posted by [identity profile] wishwords.livejournal.com at 02:04am on 21/09/2007
The person who came up with the theory has fibro. It was a brilliant illustration of what a day for her is like. I'll see if I can find it.
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posted by [identity profile] wishwords.livejournal.com at 02:15am on 21/09/2007
I found it! She has Lupus, but the theory is for anyone with chronic illness. Here, go look: http://www.butyoudontlooksick.com/2004/11/the_spoon_theory.php

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